Thursday, September 27, 2007

Mommy's Thoughts about Little Ana


The photo of Ana on the beach is one of our favorites. We love the way she's gazing directly into the camera. We also love how it captures her sweetness. Not only is she sweet, she can also be very silly. We love this about her as well. She laughs and laughs--sometimes big, deep belly laughs. Here are some funny things Ana has done lately:

She adores animals. If we had a dog, according to Ana it would be called "a Ram-Sam-Sam" and if we had a cat, it would be named "oh CatLizard." We have no idea where these names came from, but we're going with them.

Penguins are one of her favorite creatures; she calls herself "Pinguino" and calls her favorite classmates penguins--"Isaiah the Penguin" and "Gabriel the Penguin.

She also has had a thing for cows. At her birthday party in Central Park last weekend, she started singing happy birthday to all of us in "moo" -- and we all joined in (meaning, "moo moo moo moo moo moo, moo moo moo moo moo moo, moo moo moo moo moo mooooo, moo moo moo moo moo moo!").

Along that "mooey" line, when she wants to say "hello" or "I love you" to her favorite people, she comes up very close, with her eyes and nose right next to ours and says a very serious sounding "moooo."

She makes up words to songs all the time. She started singing a song about a "mommy gooney bird" and when her mommy objected to being called such a thing, she ribbed her even more, and constantly adding more animal names that she knows will get to her mommy, such as "mommy hippo," "mommy elephant" (the worst!!!), "mommy lizard," and "mommy snake." When her mommy begs and pleads to be called "mommy butterfly" or something more graceful, she refuses.

On the flip side--and this gets back to her sweetness--the other day mommy and Ana were heading back into Manhattan after six days and nights at the Ronald McDonald House in New Jersey, where Ana endured countless detoxification IVs and HBOT sessions. As we pulled up to our building, she offered up "mommy, you are an awesome driver."

During that same trip, while eating lamb kabobs in a little Greek restaurant, she said: "Mmmmm, this tastes so . . . greeky."

She has a mad crush on twenty-something year old speech and language pathologist "Craigsalad" (so named because he eats egg-salad sandwiches at our house). Craig plays "duck, duck, patos" (duck in spanish) with her and calls her "Patos." So, for a while now she has been calling a lot of people Patos. Her latest variation of that is to add "os" onto the end of almost everything she says. For example, if she wants to make eggs (a favorite), she will say "let's-os make-os eggies-os now-os."

A somewhat alarming statement she made to Auntie Denise and her mommy the other night on the subway was: "I hear-os all-os and know-os all-os" (and indeed, we do think she hears and knows all--we better be careful!). She has caused a lot of people to adopt this pig-latinish way of speaking; the last time we were at the doctor's office getting her chelation IV, eventually all of the nurses and nurses aides were talking this way!

She is definitely the favorite of the doctor's office, as well as of her therapists. In part it is probably because there are comparably very few girls on the Spectrum, but in part it is also because she is so darn cute. I, her mother, can say that because she looks nothing like me . . . she looks like her Spanish-Peruvian father and her grandfather of Scottish ancestry.

And finally, when asked by the head of admissions at the Gillen Brewer School today what her name is, she testily and loudly replied: "I don't have a name. NO NAMES!" (We may have to kiss that school goodbye.)

Sunday, September 23, 2007

Emmi, Sophie and Gracie Raise $134.28 for Ana by Walking Neighborhood Dogs!





We are so thankful to Emmi Wheeler, Sophie Wheeler and Gracie Helgeson for raising money for Ana. They took the initiative to make flyers featuring Ana's picture and hit the streets of our neighborhood. They shared Ana's story, stating that she is Nicky Leivermann's cousin, and asked if they could earn money by walking dogs around our culdesacs. Thanks to all of you who donated and to these sweet girls for their loving gestures and hard work ethics - they worked for three days straight!

Wednesday, September 12, 2007

Learn More about Autism




Did you know that Autism is sharply rising?

Today, one in every 150 kids has Autism. According to New York Times journalist, David Kirby, this statistic was one in every 10,000 births in the 1980s and one in 250 in 2000.

Generation Rescue: http://www.generationrescue.com/
Autism Research Institute and DAN (Defeat Autism Now): http://www.autism.com/
Evidence of Harm: http://www.evidenceofharm.com/
Safe Minds: http://www.safeminds.org/
Brain Matters: http://www.brainmattersinc.com/

Saturday, September 8, 2007

Nicky Raises $270.00 at his 9th Birthday Party


Nicky, Ana's cousin, lives in Minnesota. He had his 9th birthday party on 9/21 and instead of receiving gifts, he requested that all of his friends bring a small donation to help pay for some of Ana's medical expenses. His buddies were very generous and donated $270.00 Nicky had plenty of fun playing football, kickball and baseball with his buddies and was glad to help Ana!